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ECIS - European Cancer Information System

Privacy statement


This privacy statement provides information about the processing and the protection of your personal data. 


Processing operation: Websites and e-services at the JRC 

Data Controller: JRC. T.4 – Data governance and services 

Data Operational Controller: JRC. F.1 – Disease prevention 

Record reference:  DPR-EC-00406 


Table of Contents 

  1. Introduction 
  2. Why and how do we process your personal data? 
  3. On what legal ground(s) do we process your personal data? 
  4. Which personal data do we collect and further process? 
  5. How long do we keep your personal data? 
  6. How do we protect and safeguard your personal data? 
  7. Who has access to your personal data and to whom is it disclosed? 
  8. What are your rights and how can you exercise them?  
  9. Contact information 
  10. Where to find more detailed information?  


  1. Introduction 

The European Commission (hereafter ‘the Commission’) is committed to protect your personal data and to respect your privacy. The Commission collects and further processes personal data pursuant to Regulation (EU) 2018/1725 of the European Parliament and of the Council of 23 October 2018 on the protection of natural persons with regard to the processing of personal data by the Union institutions, bodies, offices and agencies and on the free movement of such data (repealing Regulation (EC) No 45/2001). 

This privacy statement explains the reason for the processing of your personal data, the way we collect, handle and ensure protection of all personal data provided, how that information is used and what rights you have in relation to your personal data. It also specifies the contact details of the responsible Data Controller with whom you may exercise your rights, the Data Protection Officer and the European Data Protection Supervisor. 

The information in relation to the processing operation “websites and e-services at the JRC” is undertaken by the Data governance and services Unit T.4 of the Joint Research Centre (JRC.T.4), which acts as the data controller.  

The JRC.F.1 is managing the processing itself and acts as the Data Operational Controller. 

This website/e-service concerns the European Cance Information System (ECIS).  

  1. Why and how do we process your personal data? 

Most of JRC websites are accessible without giving any personal information. Personal data however are required in the following cases which this record aims to cover. 

To provide specific e-services on the ECIS website 

An e-service on the ECIS website is a service or resource made available on the Internet in order to improve the communication between citizens and businesses on the one hand and the JRC on the other hand. 

Two types of e-services are, or may be offered by the ECIS website: 

Your personal data will not be used for an automated decision-making including profiling.  

  1. On what legal ground(s) do we process your personal data 

We process your personal data, because, according to Article 5(1): 

  1. The processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the Union institution or body. 
  2. You have given your consent to the processing of your personal data for one or more specific purposes. Registration of data subjects to access the e-services is purely on a voluntary basis. The persons concerned have unambiguously given their consents (Art. 5 (d) of Regulation (EU) 2018/1725). 

In the particular case of names of authors in scientific publications or reports or further personal data of the authors mentioned in the publications or reports (such as affiliation, contact details) we process your personal data in line with established practices for scientific publications and reports and according to Article 5(1) point a) above. 

We do not process special categories of personal data, therefore Article 10 of Regulation (EU) 2018/1725 does not apply.  

  1. Which personal data do we collect and further process?  

The type of personal information we collect depends on how you are specifically interacting with us and which services you are using. Generally, we collect the following categories of personal information: 

A. Users of the ECIS e-services 

To provide you with access to the e-service the JRC.F.1 collects the following personal data, either through a dedicated on-line registration form, email communication or through the European Commission Authentication Service (EU Login): 

B. ECIS administrators: 

The personal data collected are: Name, surname, affiliation, EU login username and email. 

C. Additional information 

In the case of EU Login the Commission personnel number, a unique key and group membership may be collected. 

A username and password could also be set up at the first registration. 

By logging in and accessing your account, you are indicating your consent to the use of the data as described in this privacy statement. 

The e-service may collect the following additional data about each user: 

Cookies are managed according to the Commission corporate policy.  

The provision of your personal data is not mandatory, but we need them in order to grant you access to the specific e-service provided by ECIS. 


  1. How long do we keep your personal data? 


A. Personal data kept in the ECIS e-services  

Personal data linked to scientific publications and reports cited on this website are kept as long as the publications and reports are displayed there. 

Additional data collected that are related to your interaction with the e-services include: 

Time limits of the retention of data in the EU Login authentication service are defined in the privacy statement of the European Commission's Identity & Access Management Service (DPR-EC-03187). 

B. ECIS e-services administrators: 

The JRC.F.1 only keeps your personal data for the time you will be working in the ECIS as administrator. Your personal data will be deleted when you will no longer work on these activities/under this specific role. 

  1. How do we protect and safeguard your personal data? 

All personal data in electronic format (e-mails, documents, databases, uploaded batches of data, etc.) are stored either on the servers of the European Commission or of its contractors. All processing operations are carried out pursuant to the Commission Decision (EU, Euratom) 2017/46 of 10 January 2017 on the security of communication and information systems in the European Commission. 

The Commission’s contractors are bound by a specific contractual clause for any processing operations of your data on behalf of the Commission, and by the confidentiality obligations deriving from the transposition of the General Data Protection Regulation in the EU Member States (‘GDPR’ Regulation (EU) 2016/679). 

In order to protect your personal data, the Commission has put in place a number of technical and organisational measures in place. Technical measures include appropriate actions to address online security, risk of data loss, alteration of data or unauthorised access, taking into consideration the risk presented by the processing and the nature of the personal data being processed. Organisational measures include restricting access to the personal data solely to authorised persons with a legitimate need to know for the purposes of this processing operation. 

  1. Who has access to your personal data and to whom are they disclosed? 

A. ECIS e-services 

Your personal data can only be accessed by authorised persons and Commission internal sites: 

The information we collect will not be given to any third party, except to the extent and for the purpose we may be required to do so by law. 

  1. What are your rights and how can you exercise them?  

You have specific rights as a ‘data subject’ under Chapter III (Articles 14-25) of Regulation (EU) 2018/1725, in particular the right to access, rectify or erase your personal data and the right to restrict the processing of your personal data. Where applicable, you also have the right to object to the processing or the right to data portability. 

You have consented to provide your personal data to JRC.F.1 for the present processing operation. You can withdraw your consent at any time by notifying the Data Controller. The withdrawal will not affect the lawfulness of the processing carried out before you have withdrawn the consent. 

In the case where you name appears as part of a of scientific publication,  you have the right to object to the processing of your personal data, which is lawfully carried out pursuant to Article 5(1)(a) on grounds relating to your particular situation. 

You can exercise your rights by contacting the Data Operational Controller, or in case of conflict the Data Protection Officer. If necessary, you can also address the European Data Protection Supervisor. Their contact information is given under Heading 9 below.  

Where you wish to exercise your rights in the context of one or several specific processing operations, please provide their description (i.e. their Record reference(s) as specified under Heading 10 below) in your request. 

  1. Contact information 

If you would like to exercise your rights under Regulation (EU) 2018/1725, or if you have comments, questions or concerns, or if you would like to submit a complaint regarding the collection and use of your personal data, please feel free to contact the, 

Data Operational Controller: 

Data Controller:

You may contact the Data Protection Officer ( with regard to issues related to the processing of your personal data under Regulation (EU) 2018/1725. 

You have the right to have recourse (i.e. you can lodge a complaint) to the European Data Protection Supervisor ( if you consider that your rights under Regulation (EU) 2018/1725 have been infringed as a result of the processing of your personal data by the Data Controller. 

  1. Where to find more detailed information? 

The Commission Data Protection Officer (DPO) publishes the register of all processing operations on personal data by the Commission, which have been documented and notified to him. You may access the register via the following link:

This specific processing operation has been included in the DPO’s public register with the following Record reference: DPR-EC-00406 - E-services on JRC websites 

How to reference ECIS

Should you use ECIS information in your publication, please use the following format to reference it:

Source: ECIS - European Cancer Information System
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