ECIS - European Cancer Information System

ECIS contributing initiatives and studies

The ECIS database contains the aggregated results computed from data submitted by population-based European cancer registries participating in the ENCR-JRC project on "Cancer Incidence and Mortality in Europe". These data are the basis to estimate national incidence and mortality for 2020, as a joint outcome of a collaborative exercise of the JRC and the International Agency for Research on Cancer (IARC), in collaboration with the European Network of Cancer Registries and the International Association of Cancer Registries.

For survival, the ECIS web application includes the results of the EUROCARE study, latest published edition (EUROCARE-5).

Incidence and mortality estimates 2020

The ECIS web application displays the national estimates of cancer incidence and mortality for the major cancer types in the EU-27 countries, for the year 2020. These estimates are the joint outcome of a collaborative exercise of the JRC with the International Agency for Research on Cancer (IARC), in collaboration with the ENCR and the International Association of Cancer Registries, and are based on the cancer registries historical data on incidence and mortality [a].

The incidence estimates in 2020 for the EU-27 countries are based on the data from the cancer registries participating in the ENCR-JRC project and the IARC's "CI5: Cancer Incidence in Five Continents series". The mortality data was extracted from the WHO mortality database.

The list of cancer sites and corresponding definitions used in the estimates 2020 is available here.

A standard methodology was applied to bridge a potential lack of data in the estimation of comparable cancer burden indicators across cancer sites and countries. The process is described here.

The estimates reported in the ECIS web application may differ from those provided by national bodies because of possible differences in methodology and data sources. They have been computed from the recorded data provided by the cancer registries, and should be interpreted with caution as they are the result of an estimation process and do not correspond to any recorded value. It has to be noted that the variations of estimates across countries is influenced by a number of factors, including different levels of primary prevention and care, population-based screening, data registration coverage as well as the methods used for estimation.

The ENCR-JRC project on "Cancer Incidence and Mortality in Europe"

The ENCR-JRC project on cancer incidence and mortality aims to collect data, compute and disseminate indicators for assessing and monitoring the burden of cancer in Europe. The outputs of the project consist of cancer incidence and mortality indicators, including specific analyses by cancer site, sex, age group, calendar period, and geographic area.

The project, in its first edition, makes use of data from a call launched in 2015 and addressed to all European population-based cancer registries with the aim of establishing a single European cancer-registry data repository.

A total of 149 population-based cancer registries from 34 European countries responded to the call for data and were included in the ENCR-JRC project.

The outputs of the project, published in the ECIS web application, are produced in collaboration with the cancer registries and their representative body – the ENCR Steering Committee.

More information on the ENCR and the ENCR-JRC project at www.encr.eu

The list of cancer registries participating in the ENCR-JRC project and the corresponding incidence and mortality time period is available here.

The list of cancer sites and corresponding definitions used in the ENCR-JRC project is available here.

The EUROCARE study

EUROCARE (EUROpean CAncer REgistry based study on survival and care of cancer patients) is the widest collaborative research project on cancer survival in Europe [b].

Aims of the study are to provide an updated description of cancer survival time trends and differences across European countries, to measure cancer prevalence and to study patterns of care of cancer patients.

The latest published edition, EUROCARE-5, includes data on more than 21 million cancer diagnoses provided by 99 Cancer Registries in 26 European countries.

The EUROCARE-5 results were published in 2015 on the European Journal of Cancer and are available here.

The list of cancer registries participating in the EUROCARE-5 study is available here.

The list of cancer sites and corresponding definitions used in the EUROCARE-5 study is available here.

a Ferlay J, Colombet M, Soerjomataram I, Dyba T, Randi G, Bettio M, Gavin A, Visser O, Bray F. Cancer incidence and mortality patterns in Europe: Estimates for 40 countries and 25 major cancers in 2018. Eur J Cancer. 2018 Nov; 103:356-387.

b De Angelis R.; Sant M.; Coleman M.P.; Francisci S.; Baili P.; Pierannunzio D.; Trama A.; Visser O.; Brenner H.; Ardanaz E.; the EUROCARE-5 Working Group.; et al. Cancer survival in Europe 1999-2007 by country and age: results of EUROCARE-5-a population-based study Lancet Oncology 2014,15:23-34.