ECIS - European Cancer Information System

ECIS contributing initiatives and studies

The ECIS database contains the aggregated output and the results computed from data submitted by population-based European cancer registries participating in Europe to the ENCR-JRC project on "Cancer Incidence and Mortality in Europe", and to the EUROCARE study, latest published edition (EUROCARE-5).

These data are also the basis for the national incidence and mortality estimates in 2018 developed by the International Agency for Research on Cancer (IARC), in collaboration with JRC and the ENCR.

The ENCR-JRC project on "Cancer Incidence and Mortality in Europe"

The ENCR-JRC project on cancer incidence and mortality aims to collect data, compute and disseminate indicators for assessing and monitoring the burden of cancer in Europe. The outputs of the project consist of cancer incidence and mortality indicators, including specific analyses by cancer site, sex, age group, calendar period, and geographic area.

The project, in its first edition, makes use of data from a call launched in 2015 and addressed to all European population-based cancer registries with the aim of establishing a single European cancer-registry data repository.

As of February 2018, a total of 147 population-based cancer registries from 32 European countries responded to the call for data and were included in the ENCR-JRC project.

The outputs of the project, published in the ECIS, are produced in collaboration with the cancer registries and their representative body – the ENCR Steering Committee.

More information on the ENCR and the ENCR-JRC project at

The list of cancer registries participating in the ENCR-JRC project and the corresponding incidence and mortality time period is available here.

The list of cancer sites and corresponding definitions used in the ENCR-JRC project is available here.

The EUROCARE study

EUROCARE (EUROpean CAncer REgistry based study on survival and care of cancer patients) is the widest collaborative research project on cancer survival in Europe [a].

Aims of the study are to provide an updated description of cancer survival time trends and differences across European countries, to measure cancer prevalence and to study patterns of care of cancer patients.

The latest published edition, EUROCARE-5, includes data on more than 21 million cancer diagnoses provided by 99 Cancer Registries in 26 European countries.

The EUROCARE-5 results were published in 2015 on the European Journal of Cancer and are available here.

The list of cancer registries participating in the EUROCARE-5 study is available here.

The list of cancer sites and corresponding definitions used in the EUROCARE-5 study is available here.

Incidence and mortality estimates 2018

The ECIS web application presents also national estimates of cancer incidence and mortality for the major cancer types in 40 European countries for the year 2018. These estimates are the joint outcome of a collaborative exercise led by the International Agency for Research on Cancer (IARC), in collaboration with JRC, the ENCR and the International Association of Cancer Registries, and are based on the cancer registries historical data on incidence and mortality [b].

The incidence estimates in 2018 for 40 European countries are based on the data from the cancer registries participating to IARC's "CI5: Cancer Incidence in Five Continents series". The mortality data was extracted from the WHO mortality database.

The list of cancer sites and corresponding definitions used in the estimates 2018 is available here.

A standard methodology was employed to estimate comparable cancer burden indicators across cancer sites and countries to bridge a potential lack of data. It is available here.

The estimates reported in the ECIS web application may differ from those provided by national bodies because of possible differences in methodology and data sources. They have been computed from the recorded data provided by the European Cancer Registries and should be interpreted with caution as they are the result of an estimation process and do not correspond to any recorded data. It has to be noted that the variations of estimates across European countries is influenced by a number of factors, including different levels of primary prevention and care, population-based screening, data registration coverage as well as the methods used for estimation.

a De Angelis R.; Sant M.; Coleman M.P.; Francisci S.; Baili P.; Pierannunzio D.; Trama A.; Visser O.; Brenner H.; Ardanaz E.; the EUROCARE-5 Working Group.; et al. Cancer survival in Europe 1999-2007 by country and age: results of EUROCARE-5-a population-based study Lancet Oncology 2014,15:23-34.

b Ferlay J, Colombet M, Soerjomataram I, Dyba T, Randi G, Bettio M, Gavin A, Visser O, Bray F. Cancer incidence and mortality patterns in Europe: Estimates for 40 countries and 25 major cancers in 2018. Eur J Cancer. 2018 Nov; 103:356-387.